... However...This is what happened today.
First let me say that at least two times in the past, I was asked if I wanted to see a Neuro-Ophthalmologist. The first time I said, not right now... since I wasn't having any problems. The second time I was told that is who I should see base upon my problems. So I was referred to one, I call, explained my problem, Angioma, fell a few times, intermittent double vision, blurred vision, intermittent dizziness. I had my ophthalmic records faxed to this doctor. I then received the call that the doctor looked at my records and said, "Have her come in" So that is what I did. I brought all my MRI's, medical records, except from the Neurosurgeon, since they wanted $1 a page for the first 25 pages. I could reiterate what the doctor said...even though that wasn't good enough.
The first thing this Doctor said, when I sat down was what is your problem. So I said, I have an Angioma, on my brain stem. So she said, that isn't the problem, that is what is wrong with you, or what you have... what is your problem... ? Well, needless to say, that took me back. So I said, well I have double vision, Nystagmus (she corrected my pronunciation), so she asked when I first noticed that, and I told her while I was driving, and I was scanning the horizon, and I couldn't scan smoothly, it was jumpy. So then we debated whether my eye were jumpy or the objects were. (????? I guess since I wasn't looking in a mirror, so I couldn't see what my eyes were doing...the objects were, however, they were not movable objects, so I guess it was my eyes... because I know the light pole can't jump... Wait... I don't understand the question...?) Then she said, you know there is nothing I can do for you... right...? If you want me to do something for you, I can't. I thank you for wanting to see me, that is very nice, and I appreciate that... (oh, well then let me leave... That way I can go eat lunch, and so can you... and by the way, wasn't it your receptionist who called me because you said I could be seen? I asked first, really I did... I told her why I wanted to be seen, and if I should come in to see you, and she said have your records faxed over, and I will ask the doctor... I did, she did, and I am here...What am I missing...?)
Ok, so we go through the whole thing, and she is looking to see if I would benefit from prisms, and then she dilates my eyes... and we wait... she calls me back, looks inside my eye, and then says well, there really isn't anything I can do for you... As far as work, the only people who are not able to work because they can't see out of one eye are NeuroSurgeons, and Fighter Pilots... I guess that leaves me out...
Well anyway... another dead end. Oh wait... she did say, I am surprised you aren't having more problems then this... (Based on what... what is wrong with me? But wait... you don't want to know what I have or what is wrong with me. Right?) She said from looking at me... (here we go... the neighbor can look at me and make a determination about me... I am not asking him, I am asking a specialist. The person who is supposed to know what that thing in my head will do to me, and how that should affect my life...but you can only make a judgment according to what you see. And you don't want to know what is wrong with me...you want to know what my problem is...OH GOD I AM SOOOOO CONFUSED!!!)
Well anyway, she asked me why I was falling, so I said, I am losing my balance... so she said... well that could be from anything, maybe you are attributing it to the Angioma, but it isn't that at all... Maybe it is Cardio...
Honestly... I don't know, and personally I think I am crazy, because, I should be having more trouble than I seem to have (based upon my films but that isn't what we are concerned with, we are concerned with how I look)... because from looking at me, I don't have any problems. Too bad I am not just looking at me, instead looking from me... because if I were just looking at me, I would be fine. And since everyone else is looking at me... well, hmmpf... that is all that matters right?
I am glad we cleared that up...!
1 comment:
Ditto. Same experience a million times over. Don't give up....just keep looking for new MDs. You'll find one eventually!
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