... and for the first time I felt like someone listened to me, and asked me questions, instead of giving me a blank stare, and talking at me...
This is the first time, ever... I mean ever, that someone suggested I have my driving evaluated. I have been struggling with dizziness, and double vision, and have had specialists tell me that I have a real issue, and they are surprised that I don't have worse problems than I already have, but yet when I try to tell them about my vision, and falling, and what not, I get blank stares...and they suddenly become speechless.
I told George the other day that I thought I was nuts. Sorry, I hope that didn't offend anyone... It wasn't meant to. I honestly feel that way. I go through feeling guilty for not feeling right...(not right and left or red and blue right...LOL..just kidding, btw... I am left!) I have been dealing with this now since the end of June. Finally I had some validation to my complaints, in the form of an MRI (which by the way was not a plus for me to find out... just validation), the dizziness and double vision I was having was justified... But to what end?
And by the way... this is not saying that all my prayers have been answered... this is only saying that someone is taking me seriously. I am grateful that someone is taking me seriously, and not blowing me off because this is difficult, and they really don't want to deal with it...
More to come
3 comments:
I think doctors just don't know enough about our condition. To us, it's obvious, but to them - they deal with so many neurological conditions that a lot are 'caver-what?'.
I'm so glad that you found a doctor who is taking you seriously. It's more important than a lot think! Like you said, now you have a doc that listens to you, but now where do we go from here?
You're not crazy and I'm sure you know that. The first month after my ICU stay was brutal, for me and everyone involved. I didn't get angry, I just cried all the time. I laughed all the time.
Yours has not bled, right? It practically doubled in size and that's what is causing your deficits, right?
Actually, it has bled a few times, but nothing that they have mentioned recently. I know of two times it has bled, back in 1995, and again in 2005. But no one has told me about any other times... in other words... it could have, and no one mentioned it...
For example, last week I was told for the first time that it was inside my brain stem. Of course I don't know what that means in relationship to anything else... Next week is my driving evaluation...let's see what that tells them...
First, that's so awesome. I don't know how many drs we've fired because they didn't listen and couldn't communicate to save their lives. So that is completely wonderful you two clicked. Let us know how the eval goes...
"Yours has not bled, right? It practically doubled in size and that's what is causing your deficits, right?"
Actually, our neuro says to think of it as they need to bleed to grow in size, but it can be on a micro scale. So if it's growing, it's bleeding. What he worries about it major bleeds. Of course that's not completely accurate, but eh. It makes sense, so I cling to it. So little things make sense with this disorder, you know?
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